PUBLICATIONS

LTCCC offers a wide range of publications related to long term care issues. Most are available for free; just click on any underlined title to download a copy.. If you want a hard copy, please see costs of shipping and handling for each below and send check to us at: LTCCC, 242 West 30th Street, Suite 306, NY, NY 10001.

Long Term Care Restructuring in New York State: A Consumer Perspective.  This report provides an overview and assessment of long term care programs in terms of consumers' needs and desires and makes recommendations for how system restructuring can better meet the needs of consumers.  May 2009. Click here for Word 2007 version.  Click here for PDF version.

Modifying the Case-Mix Medicaid Nursing Home System to Encourage Quality, Access and Efficiency. This study gathered information from the 35 states using a case-mix reimbursement system to reimburse nursing homes for the care of their Medicaid residents (including NYS). The report gives detailed information on how these states are encouraging access, for hard to place residents, quality as well as efficiency. Using such information as well as telephone interviews with state officials across seven case-study states, the report presents over 30 recommendations for improving the system. March 2009.

2008 Annual Report Card on Government Protection in NY State. Check out our annual report card to find out how state and government offices are doing.

The Future of Nursing Homes in New York State: Results of Two Roundtable Discussions. With funding from the New York Community Trust, LTCCC hosted two roundtable discussions on the future of nursing homes in NY State.  The roundtables brought together leaders from all of the relevant sectors - government, provider, consumer, worker and philanthropy - to brainstorm to identify the challenges and develop recommendation for future action.  This report describes the roundtables and presents over 100 realistic recommendations for action.  2008. Click on title to download for free or for hard copy send $3.

New York’s Single Point of Entry for Long Term Care: A First Year Assessment of Consumer Experience With Recommendations for the Future.  This reports examines first year experience with NY Connects, NY State's single point of entry for long term care, and provides recommendations to ensure that NY Connects truly serves New York's diverse consumer population as it is further implemented.  The report includes a state-wide survey of New Yorkers' knowledge of, and experience with, the system.  2008. Click on title to download for free or for hard copy send $3.

2007 Annual Report Card on Government Protection in NY State.  Are your elected and appointed officials working to protect you, the consumer?  Check out our annual report card to find out how state and government offices are doing.

An Assessment of Pay for Performance for Nursing Homes With Recommendations for Policy Makers.  This report provides an overview of pay for performance for stakeholder and policy makers, including special sections on issues and consumer concerns, selected experiences to date and recommendations for ensuring that a pay for performance program truly improves nursing home resident care and is not merely a bonus awarded to "good" providers. 2008. Click on title to download for free or for hard copy send $3.

Nursing Home Culture Change Power Point Presentation.  This presentation was produced for a workshop developed to educate communities about culture change.  Other resources and information on culture change are also available on the page of our website linked to above.  Click on title to download for free or for hard copy send $3.

Free Toolkit: Speak Out to Support Safe Nursing Home Staffing Standards.  Click on title to download for free or for hard copy send $5.

White Paper on Making Assisted Living Affordable in New York State. Click on title to download for free or for hard copy send $3.

2006 Annual Report on Government Protection. See how New York State leaders are doing. Compare to 2005 below.

Developing a New and Better Long Term Care System in NY State, 2006. A white paper for the new administration & state leadership to facilitate implementation of policies that better meet the future needs and preferences of all our citizens. Click on title to download for free or for hard copy send $3.

Dual Eligibles and Medicare Part D in New York State. This 20 page guide is for people who work with individuals who are dually eligible for Medicare and Medicaid.  It includes information on coverage, joining and choosing a plan, costs, utilization management and convenience, how Medicare Part D is different from Medicaid, prescription denials, Medicaid "Wrap Arounds," and appeals.  click on title to download for free or for hard copy send $3.

The New Medicare Prescription Drug Benefit: What Residents of Nursing Homes Need to Know. This short and easy-to-use guide will help people in nursing homes understand their options and responsibilities under the Medicare Part D prescription drug plans that went into effect at the beginning of 2006.  The guides provide basic information as well as a listing of resources for help and more information.  Guides are being sent to nursing homes across NY State. click on title to download for free or for hard copy send $3.

Nursing Home Oversight in New York State: A Regional Assessment. Vulnerable nursing home residents depend on the state to hold nursing home providers accountable for the care they receive by identifying problems during regular inspections and through investigations of complaints.  This report, supported with a grant from the New York Community Trust, examines the effectiveness of each regional office in ensuring resident safety and quality of life.  2006. Click on title to download for free or for hard copy send $5.

Using Law and Regulation to Protect Nursing Home Residents When Their Government Fails Them.   Despite strong legal requirements for nursing homes to provide good care and dignified conditions for residents, the nursing home crisis continues.  This report, supported with a grant from the Robert Sterling Clark Foundation, identifies the primary legal mandates that are too often disregarded by both nursing homes and government surveillance and provides pragmatic as well as inspiring examples of people and organizations that have overcome systemic hurdles in the fight to protect nursing home residents. 2006. Click on title to download for free or for hard copy send $5.

National Study on Use of Civil Money Penalties to Protect Nursing Home Residents.   Federal Civil Monetary Penalties (CMPs) and State CMPs/fines are imposed by the regulatory agencies that license nursing homes if a nursing home does not comply with regulatory standards. These fines can be used to fund innovative programs to improve the lives of nursing home residents.  This study, supported with a grant from the Commonwealth Fund, examines how states are currently using these funds, provides recommendations for way to make concrete improvements for resident quality of life and care, and provides tools for all stakeholders - families, residents, advocates, ombudsmen and providers - to help realize the potential of CMPs. 2006. Click on title to download for free or for hard copy send $3.

2005 Report Card on NY State's Ability to Protect Nursing Home Residents - See how your state leaders are doing!  2006

Nursing Home Residents at Risk: Failure of the NYS Nursing Home Survey and Complaint Systems. Study, supported by the NY Community Trust, of the effectiveness of the effectiveness of the inspection and complaint systems. 2005. Click on title to download for free or for hard copy send $5.

You're Never Too Old To Feel Good: Guidebooks and video to help older adults identify mental health issues and get care to feel better.
Short guides in English & Spanish and a free video - Click above to view or download for free.  Limited free hard copies of all materials are also available. There is a small charge to cover postage and handling.  Please click on above link for more information or call 212-385-0355.  2005.

Single Point of Entry for Long Term Care and Olmstead: An Introduction and National Perspective for Policy Makers, Consumers and Advocacy Organizations. A study, supported by the Robert Sterling Clark Foundation, of POE and Olmstead implementation across the U.S. and a survey of groups that work to improve care for consumers.  2005. Click on title to download for free or for hard copy send $3.

Assisted Living Guidebooks: Fostering Independence, Choice, and Decision-Making. Four guidebooks: (1) for potential residents; (2) for current residents; (3) for managers; and (4) for direct care staff. These guides offer concrete ideas to improve quality of life and autonomy for residents.  Limited free copies are available of the different guides. There is a small charge to cover postage and handling.  Please click on above link for more information or call 212-385-0355.   2005. Supported by the Robert Wood Johnson Foundation.  Click on title to download for free or for hard copy send $5 for each.

LTCCC Urges New York State Leaders to Consider Costs of Poor Care    2004. Click on title to download for free or for hard copy send $3.

LTCCC Position Brief: NY State Must Stop Placing Vulnerable People into the State's Most Severely Understaffed Nursing Homes    2004. Click on title to download for free or for hard copy send $3.

Residents Have the Answers: Improving Quality of Life in Long Term Care (Guide and Video).   A training package for professional caregivers describing a quality assurance system for quality of life.  Click here for information on how to order.

Improving Working Conditions for Nursing Home Direct Care Staff: Description of a project in two nursing homes in New York City  with a Ten-Step Guide to Improving Working Conditions      2004. - 17 pages - (download for free) or hard copy - send $5.

Are the Federal Nursing Home Staff Posting Requirements Serving Consumers?: Report on a study of consumer experience with postings in their nursing home(s), with recommendations for regulatory improvement.     2004. - 14 pages - (download for free) or hard copy - send $5.  

Certified Nurse Aide Screening and Continuing Education:  A National Survey of State Requirements with Recommendations for Improvement.      2004
- 35 pages - (download for free) or hard copy - send $10.00.  

What Makes for a Good Working Condition for Nursing Home Staff: What Do Direct Care Workers Have to Say?
This study is based on focus groups conducted in six nursing homes in NYC.     2003. – 24 pages - (download for free) or hard copy - send $5.00.

Nurse Aide Training in New York: An Overview of Programs and Their Regulation by the State, with Recommendations for Improvement.      2003
- 9 pages – (download for free) or for a hard copy, send $5.

Certified Nurse Aide Training "Model" Program. A model program developed by LTCCC's Nursing Home Staffing Committee. 2002     - (download for free). For a hard copy send $5.

Nurse Aide Training: Preparing for the Future, Proceedings of the February 4, 2002 Conference. Summary of information covered at the February 2002 Conference, including Best Practices.    2002. (download for free). For a hard copy, send $5.

Assisted Living in New York State: A Summary of Findings.
This is the final report of an in-depth three year study of assisted living. It includes an action agenda for consumers, providers and policy makers to help fulfill the promise of assisted living. 2001 (download for free) or $5.00 for a hard copy.

Case Studies of Assisted Living in New York: How Well Does the Rhetoric Match the Realities?
This report, part of a three year study, describes findings from ten on-site visits to assisted living facilities in NYS by project staff. It discusses aging-in place, autonomy, risk-taking, staffing, finances and regulations.   2001. Send $5.00 for a hard copy.

Improving Conditions in Nursing Homes: Adding Much Needed Staff. This position paper gives evidence of a staffing crisis in New York State nursing homes and documents the need for mandating staffing ratios in New York State nursing homes.    2001. (download for free). For a hard copy, send $5.

A Survey of Assisted Living in New York State: A Summary of Findings. This report, part of a three year study, summarizes information from 470 telephone interviews of administrators of adult homes, enriched housing and assisted living facilities.   2000. $5.00 for a hard copy.

Preparing for Quality Caregiving in Nursing Homes: Major Change is Needed in the Training and Education of Nurse Aides.   Summary of an invitational conference for nurse aides, residents and family members held in Albany in 1999.   2000 . Send $5.00 for a hard copy.

Improving the Option: Consumers' Perspectives on New York State's Managed Long Term Care Demonstration Project.
This report, from LTCCC's committee on Managed Long Term Care, offers recommendations for protecting consumers of managed long term care.    1999
-(download for free) or send $5 for a hard copy.

91 Ideas for Reducing Costs, Enhancing Revenue, and Maintaining Quality in Nursing Homes.
This resource for nursing homes lists findings from interviews with nursing home staff. It offers concrete examples of ways to reduce costs and enhance revenue while maintaining quality.   1998. $25.00 for a hard copy.

Subacute Care in Nursing Homes: What You Should Know for Those Seeking Subacute Care or Traditional Nursing Home Care. 
What is subacute care? What are the concerns and benefits? What questions to ask. For consumers and those working with consumers.   1997
- 16 pages – $5.00 for a hard copy.

Subacute Care in Nursing Homes: Consumer and Provider Perspectives on Benefits and Concerns; Recommendations for Oversight.
Analyses of questionnaires sent to consumers across the country and providers in New York State.   1997. Send $10 for a hard copy.

An Easy-to Read Guide for Residents, Families and Staff: Rules and Regulations Governing New York State Nursing Homes.
The rules nursing homes must follow in lay language.   1995 (with updates). $10.00 (50 % discount for residents; 25 % discount for friends and relatives of residents; discount for bulk orders: call LTCCC).

The Nursing Home Enforcement System in New York State: Does It Work? Analysis of the New York survey system, deficiencies and enforcement actions.
Well known study that indicates that fining works. Even more relevant today.  1995.  $15 for a hard copy.  

New York State's Nursing Home Industry Profit. Losses, Expenditures and Quality. Includes differences in sponsorship, location and size.   1994
$25 for a hard copy.

The Nursing Home Complaint System: Does It Work? Analyses, by location, of the complaint system in New York State.  1992. $15 for a hard copy.

Modifying RUGs: Responding to Consumer Concerns in New York State. Analysis of the case mix reimbursement system from a consumer perspective. Recommendations even more relevant today given the new Perspective Payment System for Medicare services (PPS).     1991. $10 for a hard copy.

Please note: Clicking on the Web publication links will open a separate window.