|
PUBLICATIONS
LTCCC
offers a wide range of publications related to long term care issues.
Except for our video, all can be downloaded for free. If you want
a hard copy, please see costs of shipping and handling for each
below and send check to us at: LTCCC, 242 West 30th Street, Suite
306, NY, NY 10001. You will find information on the following subjects.
Click on any subject.
2010 Annual Report Card on Government Protection in NY State.
2009 Annual Report Card on Government Protection in NY State.
2008
Annual Report Card on Government Protection in NY State.
2007
Annual Report Card on Government Protection in NY State .
2006
Annual Report on Government Protection .
2005
Report Card on NY State's Ability to Protect Nursing Home Residents
Policy
Reports and Papers
LTCCC Statement to U.S. Senate on Antipsychotic Drug Use in Nursing Homes. On November 30, 2011, the U.S. Senate Special Committee on Aging Held a Hearing: "Overprescribed: The Human and Taxpayers' Costs of Antipsychotics in Nursing Homes." This is LTCCC's statement. The hearing recording and materials are available at http://aging.senate.gov/hearing_detail.cfm?id=335005&.
Medicaid Redesign in NY State, Feb, 2011. Statement by LTCCC's Executive Director before Medicaid Redesign Team hearing on need to involve those who will be most affected; need to remember the purpose of the Medicaid program to ensure safety and appropriate care; need to ensure assess to least restrictive setting; and the need for adequate staffing for state's care monitoring function.
Government Monitoring & Oversight of Nursing Home Care: The Relationship Between Federal and State Agencies. May, 2010. This report
presents an in-depth assessment of how well the state and federal inspection agencies are working to jointly enforce minimum safety, health and quality of life standards in U.S. nursing homes. Downloads: Word 2007 or PDF. Read the Press Release of May 28, 2010: Word 2007. Send $10 for a hard copy.
Vulnerable and Unprotected: The Status of Elderly & Disabled Assisted Living Residents in New York State. May, 2010.
This brief on assisted living in New York State argues that the assisted living marketplace in New York is a mess and, due to provider pressure and greed, the 2004 assisted living law has not lived up to its promise. Click on title to download for free or for hard copy send $5.
Long
Term Care Restructuring in New York State: A Consumer Perspective
.
This report provides
an overview and assessment of long term care programs in terms of
consumers' needs and desires and makes recommendations for how system
restructuring can better meet the needs of consumers. May
2009. Click
here for PDF version .
Click on title to download for free or for hard copy send $10.
Modifying
the Case-Mix Medicaid Nursing Home System to Encourage Quality,
Access and Efficiency . This study gathered information
from the 35 states using a case-mix reimbursement system to reimburse
nursing homes for the care of their Medicaid residents (including
NYS). The report gives detailed information on how these states
are encouraging access, for hard to place residents, quality as
well as efficiency. Using such information as well as telephone
interviews with state officials across seven case-study states,
the report presents over 30 recommendations for improving the system.
March 2009. Click on title to download for free or for hard copy
send $10.
The
Future of Nursing Homes in New York State: Results of Two Roundtable
Discussions .
With funding from the New York
Community Trust, LTCCC hosted two roundtable discussions on the
future of nursing homes in NY State. The roundtables brought
together leaders from all of the relevant sectors - government,
provider, consumer, worker and philanthropy - to brainstorm to identify
the challenges and develop recommendation for future action.
This report describes the roundtables and presents over 100 realistic
recommendations for action. 2008. Click
on title to download for free or for hard copy send $10.
New
York's Single Point of Entry for Long Term Care: A First Year Assessment
of Consumer Experience With Recommendations for the Future .
This reports examines
first year experience with NY Connects, NY State's single point
of entry for long term care, and provides recommendations to ensure
that NY Connects truly serves New York's diverse consumer population
as it is further implemented. The report includes a state-wide
survey of New Yorkers' knowledge of, and experience with, the system.
2008. Click on title to download for free or
for hard copy send $5.
An
Assessment of Pay for Performance for Nursing Homes With Recommendations
for Policy Makers .
This report provides an overview of pay for performance for stakeholder
and policy makers, including special sections on issues and consumer
concerns, selected experiences to date and recommendations for ensuring
that a pay for performance program truly improves nursing home resident
care and is not merely a bonus awarded to "good" providers.
2008. Click on title to download for free or
for hard copy send $5.
White
Paper on Making Assisted Living Affordable in New York State .
Click on title to download
for free or for hard copy send $5.
Developing
a New and Better Long Term Care System in NY State, 2006 .
A white paper for the new
administration & state leadership to facilitate implementation
of policies that better meet the future needs and preferences of
all our citizens. Click on title to download
for free or for hard copy send $5.
Single
Point of Entry for Long Term Care and Olmstead: An Introduction
and National Perspective for Policy Makers, Consumers and Advocacy
Organizations .
A study, supported by the Robert Sterling Clark
Foundation, of POE and Olmstead implementation
across the U.S. and a survey of groups that work to improve care
for consumers. 2005. Click on title to
download for free or for hard copy send $5.
LTCCC
Urges New York State Leaders to Consider Costs of Poor Care ,
2004.
Click on title to download for free or for hard
copy send $5.
LTCCC
Position Brief: NY State Must Stop Placing Vulnerable People into
the State's Most Severely Understaffed Nursing Homes ,
2004. Click
on title to download for free or for hard copy send $5.
Nurse
Aide Training in New York: An Overview of Programs and Their Regulation
by the State, with Recommendations for Improvement, 2003.For
a hard copy, send $5.
Certified
Nurse Aide Screening and Continuing Education: A National
Survey of State Requirements with Recommendations for Improvement,
2004.
For hard copy - send
$10.
Assisted
Living in New York State: A Summary of Findings. This
is the final report of an in-depth three year study of assisted
living. It includes an action agenda for consumers, providers and
policy makers to help fulfill the promise of assisted living. 2001.
For $5 for a hard copy.
Case
Studies of Assisted Living in New York: How Well Does the Rhetoric
Match the Realities? This
report, part of a three year study, describes findings from ten
on-site visits to assisted living facilities in NYS by project staff.
It discusses aging-in place, autonomy, risk-taking, staffing, finances
and regulations. 2001. Send $5 for a hard copy.
A
Survey of Assisted Living in New York State: A Summary of Findings.
T his report, part of a three
year study, summarizes information from 470 telephone interviews
of administrators of adult homes, enriched housing and assisted
living facilities. 2000. Send $5.
for a hard copy.
Improving
Conditions in Nursing Homes: Adding Much Needed Staff .
This position paper gives evidence of a staffing crisis in New York
State nursing homes and documents the need for mandating staffing
ratios in New York State nursing homes. 2001.
For a hard copy, send $5.
Preparing
for Quality Caregiving in Nursing Homes: Major Change is Needed
in the Training and Education of Nurse Aides.
Summary of an invitational conference for nurse aides, residents
and family members held in Albany in 1999. 2000. Send
$5 for a hard copy.
Improving
the Option: Consumers' Perspectives on New York State's Managed
Long Term Care Demonstration Project.
This report, from LTCCC's committee on Managed Long Term Care, offers
recommendations for protecting consumers of managed long term care.
1999 - For send $5 for a hard copy.
Subacute Care in Nursing Homes:
Consumer and Provider Perspectives on Benefits and Concerns; Recommendations
for Oversight. Analyses of questionnaires sent
to consumers across the country and providers in New York State.
1997. ( Download
for free part 1 ) ( Download
for free part 2 ) Send $10 for a hard copy.
New
York State's Nursing Home Industry Profit. Losses, Expenditures
and Quality. Includes
differences in sponsorship, location and size, 1994. $25 for a hard
copy.
Modifying
RUGs: Responding to Consumer Concerns in New York State.
Analysis of the case
mix reimbursement system from a consumer perspective. Recommendations
even more relevant today given the new Perspective Payment System
for Medicare services (PPS).1991. $10 for a hard
copy.
Reports
Holding Government Accountable
Care and Oversight of Assisted Living. A groundbreaking study of the status of care and quality of life in our state's assisted living facilities and residences and the state's oversight and enforcement of state rules. May, 2011. Click on title to Download for free or for hard copy send $15 (96 pages).
Nursing
Home Oversight in New York State: A Regional Assessment. Vulnerable
nursing home residents depend on the state to hold nursing home
providers accountable for the care they receive by identifying problems
during regular inspections and through investigations of complaints.
This report, supported with a grant from the New York Community
Trust, examines the effectiveness of each regional office in ensuring
resident safety and quality of life. 2006. Click
on title to Download for free or for hard copy send $10.
Nursing
Home Residents at Risk: Failure of the NYS Nursing Home Survey and
Complaint Systems .
Study,
supported by the NY Community Trust, of the effectiveness of the
effectiveness of the inspection and complaint systems. 2005. Click
on title to Download for free or for hard copy send $5.
Are
the Federal Nursing Home Staff Posting Requirements Serving Consumers?:
Report
on a study of consumer experience with postings in their nursing
home(s), with recommendations for regulatory improvement . 2004.
For hard copy - send
$5.
The
Nursing Home Complaint System: Does It Work? Analyses,
by location, of the complaint system in New York State. 1992. (Download for free part 1 ) ( Download for free part 2 ) ( Download for free part 3 ) $15 for a hard copy.
The
Nursing Home Enforcement System in New York State: Does It Work?
Analysis of the New York survey system, deficiencies
and enforcement actions. ( Download
for free part 1 ) ( Download
for free part 2 ) $15 for
a hard copy.
How
to Advocate for Better Long Term Care
Using
Law and Regulation to Protect Nursing Home Residents When Their
Government Fails Them.
Despite strong legal
requirements for nursing homes to provide good care and dignified
conditions for residents, the nursing home crisis continues. This
report, supported with a grant from the Robert Sterling Clark Foundation,
identifies the primary legal mandates that are too often disregarded
by both nursing homes and government surveillance and provides pragmatic
as well as inspiring examples of people and organizations that have
overcome systemic hurdles in the fight to protect nursing home residents.
Click on title to Download for free or for hard
copy send $5.
Free
Toolkit: Speak Out to Support Safe Nursing Home Staffing Standards.
Click on title to Download for free or for hard copy send $5.
National
Study on Use of Civil Money Penalties to Protect Nursing Home Residents.
Federal
Civil Monetary Penalties (CMPs) and State CMPs/fines are imposed
by the regulatory agencies that license nursing homes if a nursing
home does not comply with regulatory standards. These fines can
be used to fund innovative programs to improve the lives of nursing
home residents. This study, supported with a grant from the
Commonwealth Fund, examines how states are currently using these
funds, provides recommendations for way to make concrete improvements
for resident quality of life and care, and provides tools for all
stakeholders - families, residents, advocates, ombudsmen and providers
- to help realize the potential of CMPs. Click
on title to Download for free or for hard copy send $5.
Outline of Civil Money Penalty Advocacy Strategies for LTC Ombudsmen & Advocates Click on title to Download for free.
Educational
Material for Consumers of LTC
What
You Need to Know About Long Term Care in English and Chinese. These
booklets, in English and Chinese, help consumers understand long
term care and help them think about what their care needs are, where
they want to get care, how they can pay for care and what their
rights are. In addition to questions they can ask themselves as
they plan, the booklets also list a number of important resources
and a table listing different types of long term care programs,
the average cost of each program, the types of services offered,
eligibility rules and payment options. Click
here for English version .
Click here
for the Chinese version.
Nursing
Home Culture Change Power Point Presentation .
This presentation was produced
for a workshop developed to educate communities about culture change.
Other resources and information on culture change are also available
on the page of our website linked to above. Click
on title to Download for free or for hard copy send $5.
The
New Medicare Prescription Drug Benefit: What Residents of Nursing
Homes Need to Know. This
short and easy-to-use guide will help people in nursing homes understand
their options and responsibilities under the Medicare Part D prescription
drug plans that went into effect at the beginning of 2006.
The guides provide basic information as well as a listing of resources
for help and more information. Guides are being sent to nursing
homes across NY State. Click on title to Download
for free or for hard copy send $5.
You're
Never Too Old To Feel Good : Guidebooks and video to help older
adults identify mental health issues and get care to feel better.
Short
guides in English & Spanish and a free video - Click above to
view or Download for free. Limited free hard copies of all
materials are also available. There is a small charge to cover postage
and handling. Please click on above link for more information
or call 212-385-0355.
Assisted
Living Guidebooks: Fostering Independence, Choice, and Decision-Making.
Four
guidebooks: (1) for potential residents; (2) for current residents;
(3) for managers; and (4) for direct care staff. These guides offer
concrete ideas to improve quality of life and autonomy for residents.
Click on title to Download for free or for hard
copy send $5 for each.
An
Easy-to Read Guide for Residents, Families and Staff: Rules and
Regulations Governing New York State Nursing Homes. The
rules nursing homes must follow in lay language. For hard copies:
$10.00 (50 % discount for residents; 25 % discount
for friends and relatives of residents; discount for bulk orders:
call LTCCC).
Consumers'
Guide to Nursing Home Care: The Use of Restraints. A
brochure for nursing home residents and their families; written
a number of years ago, but still relevant. It explains when restraints
can and cannot be used and lists the rights that residents and family
members have. It has a checklist for identifying abuse and lists
ways to challenge the use of restraints. Click on the title above
for free Download or send $5 for a hard copy.
Subacute
Care in Nursing Homes: What You Should Know for Those Seeking Subacute
Care or Traditional Nursing Home Care.
What is subacute care? What are
the concerns and benefits? What questions to ask. For consumers
and those working with consumers. $5
for a hard copy.
Educational
Material for Providers of Long Term Care
Residents
Have the Answers: Improving Quality of Life in Long Term Care (Guide
and Video) .
A training package
for professional caregivers describing a quality assurance system
for quality of life. Click
here for information on how to order entire kit. To view video click here for part 1. Click here for part 2. Click here for part 3. Click here to download the viewing and resource guide.
Measuring
the Quality of Resident-Staff Interactions. This
is a questionnaire, developed under a New York State Department
of Health grant, to use with nursing home residents to measure the
quality of resident-staff interactions. Click on the title
above for free Download or send $5 for a hard copy.
Improving
Working Conditions for Nursing Home Direct Care Staff :
Description of a project
in two nursing homes in New York City with a Ten-Step Guide
to Improving Working Conditions. For hard copy - send $5.
What
Makes for a Good Working Condition for Nursing Home Staff: What
Do Direct Care Workers Have to Say? This
study is based on focus groups conducted in six nursing homes in
NYC. For hard
copy - send $5.
Certified Nurse Aide Training "Model" Program:. A model program developed by LTCCC's Nursing Home Staffing Committee. For a hard copy, send $5.
Nurse
Aide Training: Preparing for the Future, Proceedings of the February
4, 2002 Conference .
Summary of information covered
at the February 2002 Conference, including Best Practices.
For a hard copy, send $5.
91
Ideas for Reducing Costs, Enhancing Revenue, and Maintaining Quality
in Nursing Homes.
This resource for nursing homes lists findings from interviews with
nursing home staff. It offers concrete examples of ways to reduce
costs and enhance revenue while maintaining quality.$25 for a hard
copy.
Assisted
Living Guidebooks: Fostering Independence, Choice, and Decision-Making.
Four guidebooks:
(1) for potential residents; (2) for current residents; (3) for
managers; and (4) for direct care staff. These guides offer concrete
ideas to improve quality of life and autonomy for residents.
Limited free copies are available of the different guides. There
is a small charge to cover postage and handling. Please click
on above link for more information or call 212-385-0355. Click
on title to download for free or for hard copy send $5 for each.
|
