Long Term Care Community Coalition


National Links: (Note: Federal Government Links are preceded by "U.S.")

Alzheimer's Association

The mission of the Alzheimer's Association is to eliminate Alzheimer's disease through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through the promotion of brain health.  See New York State Links, below, for local chapter.

American Bar Association's Guide to Legal Help on the Internet

Have a Legal Problem? This page will help you find legal help from a lawyer or other source if you need to resolve a legal matter. The page includes information about free legal help for the needy, legal self-help, hiring an attorney, legal fees and general legal information.

AARP Legal Services Network

AARP members can get a free initial consultation of up to 30 minutes with an attorney who meets AARP LSN standards. Members can also receive significant discounts on other legal services.

U.S. Administration on Aging

The Administration on Aging (AoA), an agency in the U.S. Department of Health and Human Services, is one of the nation's largest providers of home- and community-based care for older persons and their caregivers. Their mission is to promote the dignity and independence of older people, and to help society prepare for an aging population.

The Brennan Center for Justice (NYU School of Law)

Promotes equality and human dignity through nonpartisan scholarship, public education and legal action.

Brookdale Center on Aging

The Brookdale Center on Aging's multidisciplinary team of social workers, nurses, lawyers, educators and ethicists provides training and technical assistance to staff at all levels within the aging network. Additionally, the Center helps non-aging agencies and businesses with their concerns for older clients, older workers or caregiver employees.

Center for Medicare Advocacy, Inc.

The Center for Medicare Advocacy, Inc. is a private, nonprofit organization which provides education, advocacy, and legal assistance to help elders and people with disabilities obtain necessary healthcare.

 U.S. Centers for Medicare & Medicaid Services

CMS maintains oversight of the survey and certification of nursing homes and continuing care providers (including home health agencies, intermediate care facilities for the mentally retarded, and hospitals), and provides information about survey activities and nursing home quality to beneficiaries, providers, researchers and State surveyors. CMS also provides health insurance for over 74 million Americans through Medicare, Medicaid and SCHIP (State Children's Health Insurance Program).

Families USA

Families USA is a national nonprofit, nonpartisan organization dedicated to the achievement of high-quality, affordable health and long-term care for all Americans.

The Gerontological Society of America

The GSA was established in 1945 to promote the scientific study of aging, to encourage exchanges among researchers and practitioners from various disciplines related to gerontology, and to foster the use of gerontological research in forming public policy.

U.S. Department of Health and Human Services: Office of Disability, Aging and Long-Term Care Policy

Health Hippo

Contains a collection of policy and regulatory materials related to health care. The site provides direct links to federal law, regulations, the federal register, GAO reports, legislation/testimony, new and reports, and cases on a wide range of issues.  

Legal Services Corporation

The Legal Services Corporation (LSC) is a private, non-profit corporation established by Congress to seek to ensure equal access to justice under the law for all Americans by providing civil legal assistance to those who otherwise would be unable to afford it. LSC was created in 1974 with bipartisan congressional sponsorship and the support of the Nixon administration, and is funded through congressional appropriation.

The Medicare Rights Center

The Medicare Rights Center is a national nonprofit organization that helps ensure that older adults and people with disabilities get good, affordable health care.

The Consumer Voice for Quality Long Term Care (formerly National Citizen's Coalition for Nursing Home Reform)

The Consumer Voice for Quality Long Term Care is a group of consumers and advocates who define and achieve quality for people with long-term care needs. NCCNHR provides information and leadership on federal and state regulatory and legislative policy development and models and strategies to improve care and life for residents of nursing homes and other long-term care facilities.

U.S. National Institute on Aging

NIA leads the national scientific effort to understand the nature of aging and to extend the healthy, active years of life. In 1974, Congress granted authority to form NIA to provide leadership in aging research, training, health information dissemination, and other programs relevant to aging and older people. Subsequent amendments to this legislation designated the NIA as the primary Federal agency on Alzheimer's disease research.

U.S. Agency for Healthcare Research and Quality (AHRQ) - Healthcare 411

Healthcare 411 is a multimedia health care news Web site created by AHRQ that provides podcasts, videos, and advice columns on the latest health care news and research findings. A new podcast is released each week, and new videos and advice columns are added each month.

National Senior Citizen Law Center

The National Senior Citizens Law Center advocates nationwide to promote the independence and well-being of low-income elderly individuals and persons with disabilities.


PHI is addressing the direct-care staffing crisis in long-term care by designing and implementing innovations in provider practice;  building multistakeholder coalitions to support public policies responsive to the needs of workers, consumers, and long-term care providers and collecting, analyzing, and disseminating information and resources related to direct-care workforce issues.

Drug Alert

DrugAlert.org is a website that alerts Seniors about potential health risks that may exist with medication and treatments that are currently sold worldwide.  

New York State Links (State links are indicated by "NY")

Alzheimer's Association NY City

The New York Chapter is a founding member of the national Alzheimer's Association. The mission of the New York City Chapter of the Alzheimer's Association is to create and promote comprehensive and humane care and treatment for persons with Alzheimer's disease and related disorders, and to provide support for their family and professional caregivers. The Chapter meets this mission in the community through increasing public awareness, providing education, creating and encouraging replication of model programs, collaborating with research centers, and undertaking advocacy.

Coalition of Institutionalized Aged & Disabled

CIAD is a non-profit organization of nursing home and adult home resident councils.  CIAD is governed by a Board of Directors of residents from facilities throughout the New York City area.  Formed in 1973, CIAD is dedicated to protecting the rights of residents and improving the quality of their life and care.

New York Safety Net

New York Safety Net is a Website which provides information and resources for people living in New York City on a range of issues including worker’s rights, family health, education, and housing.  The Website includes audio interviews on different issues, including one featuring Richard Mollot, LTCCC's executive director, discussing nursing home safety.

NY Office for the Aging

The mission of the Office for the Aging (SOFA) is to "help older New Yorkers to be as independent as possible for as long as possible through advocacy, development and delivery of cost-effective policies, programs and services which support and empower the elderly and their families, in partnership with the network of public and private organizations which serve them."

NY Office of the Attorney General

As New York State's Chief Legal Officer, the Attorney General defends and protects the people of New York. In recent years the attorney general's office has played a significant role in fighting nursing home abuse and fraud.

NY Department of Health

DOH has principal responsibility for regulating healthcare in New York, including oversight of the state's nursing homes and licensed assisted living/adult home communities.

StateWide Senior Action Councill

The New York StateWide Senior Action Council is a grassroots membership organization made up of individual senior citizens and senior citizen clubs from all parts of New York State. StateWide was organized in 1972 from War on Poverty funds with the goal of developing a statewide organization of older New Yorkers who could advocate for their interests and needs regarding services, programs and policies effecting older persons.

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Long Term Care Community Coalition
One Penn Plaza, Suite 6252
New York, NY 10119
Tel: 212-385-0355